Wednesday, May 27, 2009

The Journey Continues...

 This is my last personal Blog post most likely for a couple of days. I promise I will write when I can. In the meantime, Holly will be updating on behalf of me to keep everyone in the loop with what’s happening, what the doctors are saying and how Bear is recovering. This picture was taken when Alfred dropped us all off at the door of the hospital this morning. We are all wearing a “Bear’s Journey” Necklace. We are “seeing” peoples eyes go downward to “see” what it is…what a neat way to share Jesus with those we come in contact with.

It is funny to think we have our clocks and watches figured out, one of these days I am going to learn to relax and know God’s watch is much better than mine.  We are waiting which is really what I do best, not so much now but in general I am pretty patient. Bear is making me smile right now. He is so unconcerned about anything other than Star Wars and his PSP. He was given some apple juice so he thinks he can wait a few more hours before they take him back. He discovered a library on the 16th floor so he’s happy.

We were asked to allow him to be a part of a research study to determine the link between renal failure and Congenital Heart Defects. This is the first study of its kind done on children during and after open-heart surgery. The study is non-evasive and we have always been of the mindset to help unlock the mystery of CHD in any way we can. As an infant he was a part of another study at MUSC in Charleston, SC. Alfred and I laugh as we remember that because the doctor that did the study told us Barrett wasn’t “supposed” to have results that are good. But Alfred looked at that doctor and replied, “But you don’t know our God.” That is so true with everything about Bear. He is constantly showing the world, “You don’t know what my God can do!” Let’s all just put our watches away for today and see what our God is going to do J

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